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Robinow Syndrome

Self Help Clearinghouse

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Robinow Syndrome Foundation

National network. Founded 1994. Aim is to locate, educate and support persons affected by Robinow syndrome (also known as fetal face syndrome) a very rare, genetic dwarfing syndrome. Online support, biennual conventions and family networking.
Write:
Robinow Syndrome Foundation
P.O. Box 1072
Anoka, MN 55303
Voice: 763-291-7190
Website: http://www.robinow.org
E-mail: kmkruger@comcast.net
Verified: 7/17/2013

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